Ep 54: Caregiving, Crohn’s, MRI’s, Grief, with Felicia Michaels

Posted on Leave a commentPosted in episodes

We are joined today by the absolutely wonderful and talented comedian, writer, and Director, Felicia Michaels, to talk about a condition that has plagued her family. We talk about her mother’s diagnosis of Crohn’s Disease in the 1970’s and how this greatly impacted her life from a young age. Felicia also shares her own personal journey with Crohn’s disease and the bizarre and terrifying pain that resulted in a surprising diagnosis. We get raw and real and we also laugh and smile and Felicia inspires us with her strength and tenacity. We also talk about our country’s healthcare and social welfare programs that were a great asset to Felicia’s life, especially in the midst of daunting and overwhelming responsibility as she found herself taking care of her mother as a child. We talk about the progress made in treating and understanding Crohn’s Disease and acknowledge that there is still a long way to go. We leave with some final words of wisdom and urge you to check out Felicia’s podcast with Jessica Wellington, The Liars Club. And keep an eye out for her films: My Hole Story, and Pervs. (links below)

THE CHECK-IN: Andy got an MRI of her heart and talks about the results and her love of hospital gowns. Joleen talks about the healing process and grief journey following the sudden death of her cousin.

MEMORABLE MOMENTS:

“Just ask me, I’ll tell you what’s wrong with me.”

“The worst thing is when you give a bunch of advice to a new comic and then you go on stage and eat it. So now I don’t give advice before my set.”

“Make friends with people who are funnier than you.”

“I would like to be the voice of positivity today.”

“I’d like to advocate for all the children who are taking care of a parent in this country.”

“Oh my god! My mom pees 30 times a day!”

“My kids caught me… licking the bread.”

“I have so much empathy for what people go through.”

“Take a screen capture of your tweet and put it on Instagram!”

“M&M’s, rainbows, and butterflies. M&M’s, rainbows, and butterflies.”

SUPPORT THE PODCAST ON PATREON:

Recording this podcast is rewarding and fulfilling, but it’s also a lot of hard work. We want to bring you more shows like this one and we want to continue to grow our audience and we want to stay ad-free! In order to do this, we have set up a Patreon page where we are offering a bunch of really cool rewards and perks in exchange for small monthly contributions. We would love your support! So check out our Patreon page today and donate if you can! https://www.patreon.com/dealwithitpodcast

LINKS:

Want to get an email when new episodes are released? Subscribe via email here: http://dealwithitshow.com/subscribe-via-email/

We want to hear from you! Email us your diagnosis stories, share any inspirational quotes, questions, comments, and reactions. What topics should we discuss? What are you dealing with? What health tips and tricks do you have? Here’s a link to contact us: www.dealwithitshow.com/contact

Checkout Felicia Michaels’ award-winningg documentary, Pervs, and watch the trailer on her website: https://www.feliciamichaels.net/

Listen to Felicia Michaels’ podcast, The Liars Club: https://itunes.apple.com/us/podcast/the-liars-club-w-jessica-wellington-and-felicia-michaels/id1399754888?mt=2

Follow Felicia Michaels on Instagram: https://www.instagram.com/feliciamichaels/

Follow Felicia Michaels on Twitter: https://twitter.com/FeliciaMichaels

The signs of Marfan Syndrome: https://www.marfan.org/about/signs

Follow the Marfan Foundation on Facebook: https://www.facebook.com/pg/TheMarfanFoundation/posts/

National Alliance on Mental Illness support: https://www.nami.org/Find-Support

This podcast is edited and produced by Alex Stein. Listen to his podcast here: https://www.thealexsteinpodcast.com

Follow us on Twitter @dealwithitpod: https://twitter.com/dealwithitpod
Follow us on Instagram @dealwithitpodcast: https://www.instagram.com/dealwithitpodcast/
Join our Facebook community: https://www.facebook.com/dealwithitpodcast/

Remember to rate, review and subscribe on iTunes: https://itunes.apple.com/us/podcast/deal-with-it/id1244513630?mt=2

Ep 53: Super Mini Recap of the 34th Annual Marfan Conference!

Posted on Leave a commentPosted in episodes

We are so excited to share this recap of the 34th annual Marfan Conference in Stanford. Andy talks about the amazing activities, medical appointments, workshops, seminars and more! And she shares how beneficial the conference is on so many levels. She talks about her performance with Katie Lasky Lovebomb and Joleen and Alex ask questions and we discuss the importance of community. Joleen reads a listener iTunes review! And we share some sound clips from the performance and from a video with Andy’s mom.

To watch the live stream with Andy, Katie Lasky, Dominga Noe and Austin Carlile go here: https://www.facebook.com/katie.lasky.92/videos/10160681213145080/?hc_ref=ARTZg_oRs4YoBJSrMzp9FXs4zcDJ6dyKFhGSWFNkZVEjcHg02-A5muvri8K2FeSZpB0

MEMORABLE MOMENTS:

“How does your filter process stuff? Oh I don’t have one!”

“We can’t cry. We don’t have enough time!”

“I’m picturing this is like Comic Con for Marfan stuff!”

“Did you get your degree from Wikipedia?”

“Honey, this is soap!”

“Everyone who has ever gone to the Marfan Conference wishes they would have gone sooner.”

SUPPORT THE PODCAST ON PATREON:

Recording this podcast is rewarding and fulfilling, but it’s also a lot of hard work. We want to bring you more shows like this one and we want to continue to grow our audience and we want to stay ad-free! In order to do this, we have set up a Patreon page where we are offering a bunch of really cool rewards and perks in exchange for small monthly contributions. We would love your support! So check out our Patreon page today and donate if you can! https://www.patreon.com/dealwithitpodcast

LINKS:

Want to get an email when new episodes are released? Subscribe via email here: http://dealwithitshow.com/subscribe-via-email/

We want to hear from you! Email us your diagnosis stories, share any inspirational quotes, questions, comments, and reactions. What topics should we discuss? What are your New Years Resolutions? Here’s a link to contact us: www.dealwithitshow.com/contact

The signs of Marfan Syndrome: https://www.marfan.org/about/signs

Follow the Marfan Foundation on Facebook: https://www.facebook.com/pg/TheMarfanFoundation/posts/

National Alliance on Mental Illness support: https://www.nami.org/Find-Support

This podcast is edited and produced by Alex Stein. Listen to his podcast here: https://www.thealexsteinpodcast.com

Follow us on Twitter @dealwithitpod: https://twitter.com/dealwithitpod
Follow us on Instagram @dealwithitpodcast: https://www.instagram.com/dealwithitpodcast/
Join our Facebook community: https://www.facebook.com/dealwithitpodcast/

Remember to rate, review and subscribe on iTunes: https://itunes.apple.com/us/podcast/deal-with-it/id1244513630?mt=2