Ep 50: Our 50th Episode! Instagram, Confidence, Sam Grittner Love, with Andy, Joleen and Alex

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The Deal With It Podcast is celebrating a year on the air! We are so thankful for all the love and support over the past year and we’re excited to share this episode with you! We talk the origins of the podcast, our dreams, goals and our anxieties! We share some awesome insights from the talented comedian Sam Grittner and we encourage everyone to follow him on Twitter: https://twitter.com/samgrittner

We also talk Instagram modeling, pursuing our passions and feeling good about our fashion and style.

THE CHECK-IN: Joleen talks about being at a good place mentally and being less afraid of judgment and Andy talks about recently doing the Marfan Walk for Victory in Pasadena.

We leave you with some of our favorite moments from the past year! We hope you enjoy!

And as promised, here are the secret prom dress photos Andy took as a high schooler:

Be sure to join our Facebook page for a great community of love and support and let us know what you want to see next on the podcast! https://www.facebook.com/dealwithitpodcast/

See Andy and Joleen at Acme Comedy Club in Minneapolis! June 26th-30th – Get your tickets here: https://acme-comedy-company-acme-comedy-company.seatengine.com/events/23538

 

MEMORABLE MOMENTS:

“We grew up on Oregon Trail. We don’t know!”

“My dad’s like: Sex will make you die!”

“I had a case of the bums.”

“It’s Instagram! Put your face in it!”

“Here’s a secret, go to a cool store, hide the tags, and take some pictures in the back. It’s retail therapy.”

“Hey, dare me to try this on!”

“Look what I’m wearing, I have red pants on!”

“I’m genuinely interested, what’s weird about it?”

SUPPORT THE PODCAST ON PATREON:

Recording this podcast is rewarding and fulfilling, but it’s also a lot of hard work. We want to bring you more shows like this one and we want to continue to grow our audience and we want to stay ad-free! In order to do this, we have set up a Patreon page where we are offering a bunch of really cool rewards and perks in exchange for small monthly contributions. We would love your support! So check out our Patreon page today and donate if you can! https://www.patreon.com/dealwithitpodcast

LINKS:

Want to get an email when new episodes are released? Subscribe via email here: http://dealwithitshow.com/subscribe-via-email/

We want to hear from you! Email us your diagnosis stories, share any inspirational quotes, questions, comments, and reactions. What topics should we discuss? What are your New Years Resolutions? Here’s a link to contact us: www.dealwithitshow.com/contact

National Alliance on Mental Illness support: https://www.nami.org/Find-Support

This podcast is edited and produced by Alex Stein. Listen to his podcast here: https://www.thealexsteinpodcast.com

Follow us on Twitter @dealwithitpod: https://twitter.com/dealwithitpod
Follow us on Instagram @dealwithitpodcast: https://www.instagram.com/dealwithitpodcast/
Join our Facebook community: https://www.facebook.com/dealwithitpodcast/

Remember to rate, review and subscribe on iTunes: https://itunes.apple.com/us/podcast/deal-with-it/id1244513630?mt=2

Ep 49: Weight Loss, Broken Bones, Standup Comedy, Mental Health Advice, with Katsy Chappell

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Today we are excited to have the hilarious comedian and talented actress Katsy Chappell on the podcast. Katsy shares her comedy and entertainment path with her infectious comedic storytelling style and drops words of wisdom throughout the episode. Some shows and movies where you may have seen Katsy include: Hollywood Squares, Roseanne, In Living Color, and True Lies. She also killed it on Star Search making it to the semi-finals. Katsy also talks about life as a 300 pound woman and shares her experience as a model. We talk broken bones and recovery and hitting that wall and taking a break from Hollywood. Joleen and Katsy share their experiences performing for our troops overseas and Katsy talks about breaking bones and the pain that made it hurt to walk. We talk weight loss and diabetes and having to relearn how to eat. We also talk soap making and crafting.

We asked for mental health advice from our listeners and shared those as well, so thank you all for contributing! Be sure to join our facebook page for a great community of love and support. https://www.facebook.com/dealwithitpodcast/

See Andy and Joleen at Acme Comedy Club in Minneapolis! June 26th-30th – Get your tickets here: https://acme-comedy-company-acme-comedy-company.seatengine.com/events/23538

THE CHECK-IN: Andy is excited to be going to Denver to see her bestie Sarah and we talk about the importance of friendship for our mental health. And Joleen is very sweaty! 🙂

MEMORABLE MOMENTS:

“I’m still the sweatiest girl on Runyon.”

“I’ve got my big cotton underwear on so I knew I’d be okay.”

“I only tip because I want people to like me…”

“My family made bets on when I’d come back to Oklahoma! Most of them are dead now.”

“I moved to La from Oklahoma and my first musical out here was Oklahoma! I was the only black person in the whole show!”

“I opened up a savings account in Intercourse Pennsylvania, just so I could see intercourse on the mail!”

“Don’t oh no me! I’m alive!”

“If you get into an accident, have them take you to USC, because every doctor is gorgeous!”

“I self medicated at Waffle House.”

“I was a junk food vegan.”

SUPPORT THE PODCAST ON PATREON:

Recording this podcast is rewarding and fulfilling, but it’s also a lot of hard work. We want to bring you more shows like this one and we want to continue to grow our audience and we want to stay ad-free! In order to do this, we have set up a Patreon page where we are offering a bunch of really cool rewards and perks in exchange for small monthly contributions. We would love your support! So check out our Patreon page today and donate if you can! https://www.patreon.com/dealwithitpodcast

LINKS:

Want to get an email when new episodes are released? Subscribe via email here: http://dealwithitshow.com/subscribe-via-email/

We want to hear from you! Email us your diagnosis stories, share any inspirational quotes, questions, comments, and reactions. What topics should we discuss? What are your New Years Resolutions? Here’s a link to contact us: www.dealwithitshow.com/contact

Watch Katsy Chappell’s Youtube videos Qrafty Qomic: https://www.youtube.com/channel/UCFBEqcuWBJpEbUJtj3h0T0g

Follow Katsy Chappell on Facebook: https://www.facebook.com/qraftyqomic

Follow Katsy Chappell on Instagram: https://www.instagram.com/qraftyqomic/

National Alliance on Mental Illness support: https://www.nami.org/Find-Support

This podcast is edited and produced by Alex Stein. Listen to his podcast here: https://www.thealexsteinpodcast.com

Follow us on Twitter @dealwithitpod: https://twitter.com/dealwithitpod
Follow us on Instagram @dealwithitpodcast: https://www.instagram.com/dealwithitpodcast/
Join our Facebook community: https://www.facebook.com/dealwithitpodcast/

Remember to rate, review and subscribe on iTunes: https://itunes.apple.com/us/podcast/deal-with-it/id1244513630?mt=2

Ep 25: Ehlers Danlos, Autoimmune Disease, Chronic Pain, with Sue Redman

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(Replay) Actor, writer, director, and producer Sue Redman joins us to talk about her diagnosis journey and the obstacles she has faced along the way. We discuss how pain and illness affect our lives, careers, relationships and gives us a different perspective of the world. Sue talks about having an autoimmune disease and how she was in the best shape of her life and all of a sudden it was like her brain would shut off and she couldn’t function, and on top of that, she would get abject depression. We talk about the surprising things doctors do and say and what it’s like to not understand what is going on with your body. We also talk about Ehlers Danlos Syndrome and its connection to Marfan Syndrome.

To wrap up the episode we discuss this IFLS article: Do Humans Love Dogs More Than People? http://www.iflscience.com/plants-and-animals/study-explains-empathize-dogs-people/

THE CHECK IN: Andy talks about panic attacks and working out. Joleen updates us on meditation and her experience with a great Facebook support group.

 

MEMORABLE MOMENTS:

“I’m really good at hip thrusts, like really good.”

“A doctor once asked me: have you considered giving up on your dreams?”

“When I’m having an anxiety attack, I look around my room and take note of what is real.”

“Wellbutrin was like… I could flip a car right now! Let’s rob a bank!”

 

LINKS:

Recording this podcast is rewarding and fulfilling, but it’s also a lot of hard work. We want to bring you more shows like this one and we want to continue to grow our audience and we want to stay ad-free! In order to do this, we have set up a Patreon page where we are offering a bunch of really cool rewards and perks in exchange for small monthly contributions. We would love your support! So check out our Patreon page today and donate if you can! https://www.patreon.com/dealwithitpodcast

Want to get an email when new episodes are released? Subscribe via email here: http://dealwithitshow.com/subscribe-via-email/

We want to hear from you! Email us your diagnosis stories, share any inspirational quotes, questions, comments, and reactions. What topics should we discuss? Here’s a link to contact us: www.dealwithitshow.com/contact

Follow Sue Redman on Instagram: https://www.instagram.com/ohsueredman/

What is Ehlers Danlos Syndrome: https://www.ehlers-danlos.com/what-is-eds/

The signs of Marfan Syndrome: https://www.marfan.org/about/signs

National Alliance on Mental Illness support: https://www.nami.org/Find-Support

This podcast is edited and produced by Alex Stein. Listen to his podcast here: https://www.thealexsteinpodcast.com

Follow us on Twitter @dealwithitpod: https://twitter.com/dealwithitpod
Follow us on Instagram @dealwithitpodcast: https://www.instagram.com/dealwithitpodcast/
Like us on Facebook: https://www.facebook.com/dealwithitpodcast/

Remember to rate, review and subscribe on iTunes: https://itunes.apple.com/us/podcast/deal-with-it/id1244513630?mt=2

Ep 42: Scientific Conspiracies, Resilience, Medical Marijuana and more!

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Joleen, Andy and Alex are joined by the wonderful Xchel Hernandez and we discuss medical news stories from our favorite sources. We get silly and serious and have a lot of fun. We hope you enjoy!

ARTICLES FROM THE EPISODE:

8 Scientific Conspiracies That Turned Out To Be True
http://www.iflscience.com/editors-blog/8-scientific-conspiracies-that-turned-out-to-be-true/

Two Controversial Claims About Medical Marijuana Have Been Debunked
http://www.iflscience.com/health-and-medicine/two-controversial-claims-about-medical-marijuana-have-been-debunked/

The science of resilience: What are the ingredients that help people cope?
http://www.sciencemag.org/news/2018/02/science-resilience-what-are-ingredients-help-people-cope

SUPPORT THE PODCAST ON PATREON:

Recording this podcast is rewarding and fulfilling, but it’s also a lot of hard work. We want to bring you more shows like this one and we want to continue to grow our audience and we want to stay ad-free! In order to do this, we have set up a Patreon page where we are offering a bunch of really cool rewards and perks in exchange for small monthly contributions. We would love your support! So check out our Patreon page today and donate if you can! https://www.patreon.com/dealwithitpodcast

LINKS:

Want to get an email when new episodes are released? Subscribe via email here: http://dealwithitshow.com/subscribe-via-email/

We want to hear from you! Email us your diagnosis stories, share any inspirational quotes, questions, comments, and reactions. What topics should we discuss? What are your New Years Resolutions? Here’s a link to contact us: www.dealwithitshow.com/contact

Xchel’s personal website: https://hisilentx.com/

Follow Xchel on Twitter: https://twitter.com/HiSilentX

Follow Xchel on Instagram: https://www.instagram.com/hisilentx/

The signs of Marfan Syndrome: https://www.marfan.org/about/signs

National Alliance on Mental Illness support: https://www.nami.org/Find-Support

This podcast is edited and produced by Alex Stein. Listen to his podcast here: https://www.thealexsteinpodcast.com

Follow us on Twitter @dealwithitpod: https://twitter.com/dealwithitpod
Follow us on Instagram @dealwithitpodcast: https://www.instagram.com/dealwithitpodcast/
Like us on Facebook: https://www.facebook.com/dealwithitpodcast/

Remember to rate, review and subscribe on iTunes: https://itunes.apple.com/us/podcast/deal-with-it/id1244513630?mt=2

Ep 41: Video Game Addiction with Xchel Hernandez

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Xchel Hernandez joins us today to talk about video game addiction. He is a Comedian, writer, director, and wonderful husband to Joleen. We hear his origin story, and how the addiction escalated as time went on to as much as 40 hours a week or more. Xchel shares with us how playing could be incredibly social in its own way, and how he was even married once before inside of a video game. Joleen has a lot to say about this! Xchel talks about how he was finally able to break the addiction and how his priorities and perspectives have changed. He has discovered and implemented new tools to combat addiction and to follow the goals that are more important to him. We also talk about how our cell phones have become a new source for video game addiction as well.

Xchel leaves us with some words of wisdom and the techniques that worked for him to defeat his video game addiction!

We also read a listener’s iTunes review and give a shoutout and prize!

THE CHECK-IN: Blood pressure updates and coping with negative self-body image and the pressures of Hollywood.

MEMORABLE MOMENTS:

“Stand up sit down fight fight fight whats my blood pressure?!”

“Andy! You said I could get a butt job!”

“After 35… Things are shifting!”

“I played video games so much it was like a day job.”

“I had a video game wife!”

“video games were a source of control.”

SUPPORT THE PODCAST ON PATREON:

Recording this podcast is rewarding and fulfilling, but it’s also a lot of hard work. We want to bring you more shows like this one and we want to continue to grow our audience and we want to stay ad-free! In order to do this, we have set up a Patreon page where we are offering a bunch of really cool rewards and perks in exchange for small monthly contributions. We would love your support! So check out our Patreon page today and donate if you can! https://www.patreon.com/dealwithitpodcast

LINKS:

Want to get an email when new episodes are released? Subscribe via email here: http://dealwithitshow.com/subscribe-via-email/

We want to hear from you! Email us your diagnosis stories, share any inspirational quotes, questions, comments, and reactions. What topics should we discuss? What are your New Years Resolutions? Here’s a link to contact us: www.dealwithitshow.com/contact

Xchel’s personal website: https://hisilentx.com/

Follow Xchel on Twitter: https://twitter.com/HiSilentX

Follow Xchel on Instagram: https://www.instagram.com/hisilentx/

South Park Video: Dopamine explained: https://www.youtube.com/watch?v=_t5aG9XEQgs

The signs of Marfan Syndrome: https://www.marfan.org/about/signs

National Alliance on Mental Illness support: https://www.nami.org/Find-Support

This podcast is edited and produced by Alex Stein. Listen to his podcast here: https://www.thealexsteinpodcast.com

Follow us on Twitter @dealwithitpod: https://twitter.com/dealwithitpod
Follow us on Instagram @dealwithitpodcast: https://www.instagram.com/dealwithitpodcast/
Like us on Facebook: https://www.facebook.com/dealwithitpodcast/

Remember to rate, review and subscribe on iTunes: https://itunes.apple.com/us/podcast/deal-with-it/id1244513630?mt=2

Ep 40: Blood Pressure, Eating, Comfort Dogs, Stem Cell Injections with Tom McNaughton

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Andy, Joleen and Alex sit down with Tom McNaughton to chat about medical news articles and talk health, hearts and even weiners! We take each other’s blood pressures and try to figure out what it all means. We give advice and have a fun light-hearted episode.

Come to a live taping of the Deal With It Podcast! Tuesday April 10th at 9pm at the Nerdist Showroom in Meltdown Comics in Los Angeles. Get your discounted tickets here: http://bit.ly/dealwithitw

Biohacker Injects Himself With Stem Cells To “Get A Bigger Dick”
http://www.iflscience.com/health-and-medicine/biohacker-injects-himself-with-stem-cells-to-get-a-bigger-dick/

Making Comfort Dogs an Everyday Part of School
https://www.kqed.org/mindshift/50580

SUPPORT THE PODCAST ON PATREON:

Recording this podcast is rewarding and fulfilling, but it’s also a lot of hard work. We want to bring you more shows like this one and we want to continue to grow our audience and we want to stay ad-free! In order to do this, we have set up a Patreon page where we are offering a bunch of really cool rewards and perks in exchange for small monthly contributions. We would love your support! So check out our Patreon page today and donate if you can! https://www.patreon.com/dealwithitpodcast

LINKS:

Want to get an email when new episodes are released? Subscribe via email here: http://dealwithitshow.com/subscribe-via-email/

We want to hear from you! Email us your diagnosis stories, share any inspirational quotes, questions, comments, and reactions. What topics should we discuss? What are your New Years Resolutions? Here’s a link to contact us: www.dealwithitshow.com/contact

Follow Tom McNaughton on Instagram: https://www.instagram.com/mc_mcnaughton/

The signs of Marfan Syndrome: https://www.marfan.org/about/signs

National Alliance on Mental Illness support: https://www.nami.org/Find-Support

This podcast is edited and produced by Alex Stein. Listen to his podcast here: https://www.thealexsteinpodcast.com

Follow us on Twitter @dealwithitpod: https://twitter.com/dealwithitpod
Follow us on Instagram @dealwithitpodcast: https://www.instagram.com/dealwithitpodcast/
Like us on Facebook: https://www.facebook.com/dealwithitpodcast/

Remember to rate, review and subscribe on iTunes: https://itunes.apple.com/us/podcast/deal-with-it/id1244513630?mt=2

Ep 39: Stealth Dyslexia, Cannabis, Positivity, with Alex Shifman

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Writer, Comedian and podcast host Alex Shifman joins us to talk about Stealth Dyslexia, Cannabis and his love of facts! He shares many lovely and awesome facts about helpful drugs, and his experiences with them, answering our many questions and being open and honest. We get his dyslexia origin story and he talks about the unique challenges people with Stealth Dyslexia face, and the amazing ways we can adapt. We also talk to Alex about mushrooms, acid, molly, and their potential usage for helping people with anxiety, PTSD, and other mental health conditions. Andy talks through her recent experience with CBD oil and shares the symptoms she felt and the effect on her chronic pain and we talk about stigmas around drugs.

We also get to talk to Alex about his amazing podcast called “At least there’s this.” The world can be a messy and awful place sometimes, but… At least there are things in our lives that make the world a better place. Each guest talks about something that makes the world beautiful. Listen here: http://www.nerdistschool.com/at-least-theres-this/

Joleen shares her connection with the show Buffy the Vampire Slayer and we talk about a TED talk on embracing negativity.

The full TED Talk we listened to: https://www.ted.com/talks/susan_david_the_gift_and_power_of_emotional_courage/transcript

THE CHECK-IN: Andy talks about trying CBD oil/Cannabis for chronic pain, and Joleen talks about being told: “We need to get a weight on you.”

MEMORABLE MOMENTS:

“Just ask for your weight in kilograms and don’t do the math.”

“I love facts! Well, I love gossip and making stuff up!”

“I had no past and there was no future and I couldn’t think of a single memory… ANDY you hit Nirvana. Do you have any idea how lucky you are?”

“I posted on Facebook that I tried CBD and thought, could I go to jail?”

“Nobody liked to smoke weed with me. I just wanted to talk about World War II and Genocide.”

“Usually there’s a dude who gets high and wants to talk about swords.”

“Alex just wikipedia’d sword. Oh it’s a bladed weapon!”

“Buffy was powerful and able to defend herself, and I was drawn to that.”

“There’s so much cool shit about candles.”

“I can’t just choose happy, because there’s so many other emotions!”

SUPPORT THE PODCAST ON PATREON:

Recording this podcast is rewarding and fulfilling, but it’s also a lot of hard work. We want to bring you more shows like this one and we want to continue to grow our audience and we want to stay ad-free! In order to do this, we have set up a Patreon page where we are offering a bunch of really cool rewards and perks in exchange for small monthly contributions. We would love your support! So check out our Patreon page today and donate if you can! https://www.patreon.com/dealwithitpodcast

LINKS:

Want to get an email when new episodes are released? Subscribe via email here: http://dealwithitshow.com/subscribe-via-email/

We want to hear from you! Email us your diagnosis stories, share any inspirational quotes, questions, comments, and reactions. What topics should we discuss? What are your New Years Resolutions? Here’s a link to contact us: www.dealwithitshow.com/contact

 

Alex Shifman: At Least There’s This Podcast: http://www.nerdistschool.com/at-least-theres-this/

The signs of Marfan Syndrome: https://www.marfan.org/about/signs

National Alliance on Mental Illness support: https://www.nami.org/Find-Support

This podcast is edited and produced by Alex Stein. Listen to his podcast here: https://www.thealexsteinpodcast.com

Follow us on Twitter @dealwithitpod: https://twitter.com/dealwithitpod
Follow us on Instagram @dealwithitpodcast: https://www.instagram.com/dealwithitpodcast/
Like us on Facebook: https://www.facebook.com/dealwithitpodcast/

Remember to rate, review and subscribe on iTunes: https://itunes.apple.com/us/podcast/deal-with-it/id1244513630?mt=2

Ep 38: Marfan Awareness Month, Part 2 with Avi Silver

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Improvisor and poet Avi Silver joins us for part 2 of this special 2 part Marfan Awareness Month series. Avi shares his diagnosis story and a quick family history including how he is a triplet. His Father and Sister also have Marfan Syndrome and we talk about how different Marfan Syndrome expresses itself even within the same family. Avi and Andy compare back brace stories and commiserate together and Avi talks about having osteopenia (weak bones.) Avi shares his harrowing aortic dissection adventure involving an emergency plane ride and a heroic supportive family. Avi’s mom is AMAZING. Avi talks about having 9 eye surgeries and several retinal detachments and shares another crazy story, this time about his vision, including being told that he may never be able to read again. Avi talks about improv, poetry and his desire to try standup comedy, which he absolutely must do! We ask Avi some personal questions and get some amazing insight and leave with an inspirational story!

Andy and Avi go through the signs of Marfan Syndrome and compare notes and we talk about the Marfan Foundation events going on around the country. You can get more info here: https://www.marfan.org/get-involved/fundraising-events/walk

For more information about the camp Avi was talking about visit here: https://chailifeline.org/about

We thank you so much for listening! If you’d like more Marfan action we recommend listening to episodes 1, 2, and 9, 37 and actually every episode touches on different aspects of life with Marfan Syndrome, through Andy’s experiences.

And remember Know Fight Win! #knowFightWin

THE CHECK-IN: Andy and Joleen talk bruising, bleeding and falling and the surprising ways people react to pain.

MEMORABLE MOMENTS:

“Let’s play the game, “What’s that clicking sound?””

“You just kept acting? Damn Meryl Streep!”

“I don’t want to go to the ER right now! I’m having too much fun!”

“I got one hour a day to do whatever I wanted!”

“Get out of the pool andy! Never!”

“My friends loved my back brace. Let me punch you!”

“Oh I could go blind? Why the ef didn’t you tell me?”

“I thought I was just Emo, but nope, I was depressed.”

“My little big heart. That should be the name of your memoir!”

“I wasn’t super involved in my health, as a 7 year old.”

“By the way, there’s a really good chance you may never be able to read again.”

“I just said, screw it. And I took my shirt off. And no one said anything. It was a turning point. I shouldn’t be ashamed about anything about my self.”

“Everyone can see that I’m 6 foot 9. I can’t not stand out. So I might as well stand out positively.”

 

SUPPORT THE PODCAST ON PATREON:

Recording this podcast is rewarding and fulfilling, but it’s also a lot of hard work. We want to bring you more shows like this one and we want to continue to grow our audience and we want to stay ad-free! In order to do this, we have set up a Patreon page where we are offering a bunch of really cool rewards and perks in exchange for small monthly contributions. We would love your support! So check out our Patreon page today and donate if you can! https://www.patreon.com/dealwithitpodcast

LINKS:

Want to get an email when new episodes are released? Subscribe via email here: http://dealwithitshow.com/subscribe-via-email/

We want to hear from you! Email us your diagnosis stories, share any inspirational quotes, questions, comments, and reactions. What topics should we discuss? What are your New Years Resolutions? Here’s a link to contact us: www.dealwithitshow.com/contact

Find Avi at Da Poetry Lounge: http://dapoetrylounge.com/

 

Info about the camp Avi talked about: https://chailifeline.org/about

You can donate to the Marfan Foundation all month long at www.Marfan.org/dayofgiving18

The signs of Marfan Syndrome: https://www.marfan.org/about/signs

National Alliance on Mental Illness support: https://www.nami.org/Find-Support

This podcast is edited and produced by Alex Stein. Listen to his podcast here: https://www.thealexsteinpodcast.com

Follow us on Twitter @dealwithitpod: https://twitter.com/dealwithitpod
Follow us on Instagram @dealwithitpodcast: https://www.instagram.com/dealwithitpodcast/
Like us on Facebook: https://www.facebook.com/dealwithitpodcast/

Remember to rate, review and subscribe on iTunes: https://itunes.apple.com/us/podcast/deal-with-it/id1244513630?mt=2

Ep 37: Marfan Awareness Month, Part 1 with Michael Sielaff

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Actor, improviser, comedian and activist Michael Sielaff joins us for part 1 of this special 2 part Marfan Awareness Month series. We share our Valentines day stories and gush over our Minnesota roots, and Michael shares his Marfan diagnosis story, and what it was like to be diagnosed as a young adult and having to choose between pursuing theater or college basketball. We talk about our experiences at the National Marfan Conference and how Marfans has affected dating and marriage. We talk about the importance of yearly checkups, taking our medication, and how beneficial a diagnosis can be.

Andy and Michael go through the signs of Marfan Syndrome one by one and compare notes and we talk about the Marfan Foundation events going on around the country. You can get more info here: https://www.marfan.org/get-involved/fundraising-events/walk

We thank you so much for listening! If you’d like more Marfan action we recommend listening to episodes 1, 2, and 9, and actually every episode touches on different aspects of life with Marfan Syndrome, through Andy’s experiences.

And remember Know Fight Win! #knowFightWin

Get involved with Michael Sielaff’s passion project Laughtivism here: https://www.facebook.com/groups/1552528655015826/

THE CHECK-IN: Andy and Joleen have a very special Valentine’s Day check-in, and share how they celebrated in their own non-traditional ways.

MEMORABLE MOMENTS:

“Mom, you need to understand that this is your son’s life. And Michael, you have to know what a mother goes through.”

“Its hard to keep my Marfan Syndrome a secret when my heart is going CLICK CLICK CLICK”

“We’re lanky! I like lanky!”

“Doesn’t Abe Lincoln have Marfan Syndrome?”

“Oh no, my mom has stretch marks! Am I a woman?”

“I remember a 3rd grader once looked me up and down as said, ‘dude, you’re going to die young'”

SUPPORT THE PODCAST ON PATREON:

Recording this podcast is rewarding and fulfilling, but it’s also a lot of hard work. We want to bring you more shows like this one and we want to continue to grow our audience and we want to stay ad-free! In order to do this, we have set up a Patreon page where we are offering a bunch of really cool rewards and perks in exchange for small monthly contributions. We would love your support! So check out our Patreon page today and donate if you can! https://www.patreon.com/dealwithitpodcast

LINKS:

Want to get an email when new episodes are released? Subscribe via email here: http://dealwithitshow.com/subscribe-via-email/

We want to hear from you! Email us your diagnosis stories, share any inspirational quotes, questions, comments, and reactions. What topics should we discuss? What are your New Years Resolutions? Here’s a link to contact us: www.dealwithitshow.com/contact

Find Michael on Facebook: https://www.facebook.com/sielaffmichaelj

Follow Michael on Twitter: https://twitter.com/michaeljsielaff

Follow Michael on Instagram: https://www.instagram.com/michaeljsielaff/

Get involved with Michael Sielaff’s passion project Laughtivism: https://www.facebook.com/groups/1552528655015826/

You can donate to the Marfan Foundation all month long at www.Marfan.org/dayofgiving18

The signs of Marfan Syndrome: https://www.marfan.org/about/signs

National Alliance on Mental Illness support: https://www.nami.org/Find-Support

This podcast is edited and produced by Alex Stein. Listen to his podcast here: https://www.thealexsteinpodcast.com

Follow us on Twitter @dealwithitpod: https://twitter.com/dealwithitpod
Follow us on Instagram @dealwithitpodcast: https://www.instagram.com/dealwithitpodcast/
Like us on Facebook: https://www.facebook.com/dealwithitpodcast/

Remember to rate, review and subscribe on iTunes: https://itunes.apple.com/us/podcast/deal-with-it/id1244513630?mt=2

Ep 25: Ehlers Danlos, Autoimmune Disease, Chronic Pain, with Sue Redman

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Actor, writer, director, and producer Sue Redman joins us to talk about her diagnosis journey and the obstacles she has faced along the way. We discuss how pain and illness affect our lives, careers, relationships and gives us a different perspective of the world. Sue talks about having an autoimmune disease and how she was in the best shape of her life and all of a sudden it was like her brain would shut off and she couldn’t function, and on top of that, she would get abject depression. We talk about the surprising things doctors do and say and what it’s like to not understand what is going on with your body. We also talk about Ehlers Danlos Syndrome and its connection to Marfan Syndrome.

To wrap up the episode we discuss this IFLS article: Do Humans Love Dogs More Than People? http://www.iflscience.com/plants-and-animals/study-explains-empathize-dogs-people/

THE CHECK IN: Andy talks about panic attacks and working out. Joleen updates us on meditation and her experience with a great Facebook support group.

 

MEMORABLE MOMENTS:

“I’m really good at hip thrusts, like really good.”

“A doctor once asked me: have you considered giving up on your dreams?”

“When I’m having an anxiety attack, I look around my room and take note of what is real.”

“Wellbutrin was like… I could flip a car right now! Let’s rob a bank!”

 

LINKS:

Recording this podcast is rewarding and fulfilling, but it’s also a lot of hard work. We want to bring you more shows like this one and we want to continue to grow our audience and we want to stay ad-free! In order to do this, we have set up a Patreon page where we are offering a bunch of really cool rewards and perks in exchange for small monthly contributions. We would love your support! So check out our Patreon page today and donate if you can! https://www.patreon.com/dealwithitpodcast

Want to get an email when new episodes are released? Subscribe via email here: http://dealwithitshow.com/subscribe-via-email/

We want to hear from you! Email us your diagnosis stories, share any inspirational quotes, questions, comments, and reactions. What topics should we discuss? Here’s a link to contact us: www.dealwithitshow.com/contact

Follow Sue Redman on Instagram: https://www.instagram.com/ohsueredman/

What is Ehlers Danlos Syndrome: https://www.ehlers-danlos.com/what-is-eds/

The signs of Marfan Syndrome: https://www.marfan.org/about/signs

National Alliance on Mental Illness support: https://www.nami.org/Find-Support

This podcast is edited and produced by Alex Stein. Listen to his podcast here: https://www.thealexsteinpodcast.com

Follow us on Twitter @dealwithitpod: https://twitter.com/dealwithitpod
Follow us on Instagram @dealwithitpodcast: https://www.instagram.com/dealwithitpodcast/
Like us on Facebook: https://www.facebook.com/dealwithitpodcast/

Remember to rate, review and subscribe on iTunes: https://itunes.apple.com/us/podcast/deal-with-it/id1244513630?mt=2