Ep 53: Super Mini Recap of the 34th Annual Marfan Conference!

Posted on Posted in episodes

We are so excited to share this recap of the 34th annual Marfan Conference in Stanford. Andy talks about the amazing activities, medical appointments, workshops, seminars and more! And she shares how beneficial the conference is on so many levels. She talks about her performance with Katie Lasky Lovebomb and Joleen and Alex ask questions and we discuss the importance of community. Joleen reads a listener iTunes review! And we share some sound clips from the performance and from a video with Andy’s mom.

To watch the live stream with Andy, Katie Lasky, Dominga Noe and Austin Carlile go here: https://www.facebook.com/katie.lasky.92/videos/10160681213145080/?hc_ref=ARTZg_oRs4YoBJSrMzp9FXs4zcDJ6dyKFhGSWFNkZVEjcHg02-A5muvri8K2FeSZpB0


“How does your filter process stuff? Oh I don’t have one!”

“We can’t cry. We don’t have enough time!”

“I’m picturing this is like Comic Con for Marfan stuff!”

“Did you get your degree from Wikipedia?”

“Honey, this is soap!”

“Everyone who has ever gone to the Marfan Conference wishes they would have gone sooner.”


Recording this podcast is rewarding and fulfilling, but it’s also a lot of hard work. We want to bring you more shows like this one and we want to continue to grow our audience and we want to stay ad-free! In order to do this, we have set up a Patreon page where we are offering a bunch of really cool rewards and perks in exchange for small monthly contributions. We would love your support! So check out our Patreon page today and donate if you can! https://www.patreon.com/dealwithitpodcast


Want to get an email when new episodes are released? Subscribe via email here: http://dealwithitshow.com/subscribe-via-email/

We want to hear from you! Email us your diagnosis stories, share any inspirational quotes, questions, comments, and reactions. What topics should we discuss? What are your New Years Resolutions? Here’s a link to contact us: www.dealwithitshow.com/contact

The signs of Marfan Syndrome: https://www.marfan.org/about/signs

Follow the Marfan Foundation on Facebook: https://www.facebook.com/pg/TheMarfanFoundation/posts/

National Alliance on Mental Illness support: https://www.nami.org/Find-Support

This podcast is edited and produced by Alex Stein. Listen to his podcast here: https://www.thealexsteinpodcast.com

Follow us on Twitter @dealwithitpod: https://twitter.com/dealwithitpod
Follow us on Instagram @dealwithitpodcast: https://www.instagram.com/dealwithitpodcast/
Join our Facebook community: https://www.facebook.com/dealwithitpodcast/

Remember to rate, review and subscribe on iTunes: https://itunes.apple.com/us/podcast/deal-with-it/id1244513630?mt=2

Leave a Reply

Your email address will not be published. Required fields are marked *