Ep 37: Marfan Awareness Month, Part 1 with Michael Sielaff

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Actor, improviser, comedian and activist Michael Sielaff joins us for part 1 of this special 2 part Marfan Awareness Month series. We share our Valentines day stories and gush over our Minnesota roots, and Michael shares his Marfan diagnosis story, and what it was like to be diagnosed as a young adult and having to choose between pursuing theater or college basketball. We talk about our experiences at the National Marfan Conference and how Marfans has affected dating and marriage. We talk about the importance of yearly checkups, taking our medication, and how beneficial a diagnosis can be.

Andy and Michael go through the signs of Marfan Syndrome one by one and compare notes and we talk about the Marfan Foundation events going on around the country. You can get more info here: https://www.marfan.org/get-involved/fundraising-events/walk

We thank you so much for listening! If you’d like more Marfan action we recommend listening to episodes 1, 2, and 9, and actually every episode touches on different aspects of life with Marfan Syndrome, through Andy’s experiences.

And remember Know Fight Win! #knowFightWin

Get involved with Michael Sielaff’s passion project Laughtivism here: https://www.facebook.com/groups/1552528655015826/

THE CHECK-IN: Andy and Joleen have a very special Valentine’s Day check-in, and share how they celebrated in their own non-traditional ways.

MEMORABLE MOMENTS:

“Mom, you need to understand that this is your son’s life. And Michael, you have to know what a mother goes through.”

“Its hard to keep my Marfan Syndrome a secret when my heart is going CLICK CLICK CLICK”

“We’re lanky! I like lanky!”

“Doesn’t Abe Lincoln have Marfan Syndrome?”

“Oh no, my mom has stretch marks! Am I a woman?”

“I remember a 3rd grader once looked me up and down as said, ‘dude, you’re going to die young'”

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LINKS:

Want to get an email when new episodes are released? Subscribe via email here: http://dealwithitshow.com/subscribe-via-email/

We want to hear from you! Email us your diagnosis stories, share any inspirational quotes, questions, comments, and reactions. What topics should we discuss? What are your New Years Resolutions? Here’s a link to contact us: www.dealwithitshow.com/contact

Find Michael on Facebook: https://www.facebook.com/sielaffmichaelj

Follow Michael on Twitter: https://twitter.com/michaeljsielaff

Follow Michael on Instagram: https://www.instagram.com/michaeljsielaff/

Get involved with Michael Sielaff’s passion project Laughtivism: https://www.facebook.com/groups/1552528655015826/

You can donate to the Marfan Foundation all month long at www.Marfan.org/dayofgiving18

The signs of Marfan Syndrome: https://www.marfan.org/about/signs

National Alliance on Mental Illness support: https://www.nami.org/Find-Support

This podcast is edited and produced by Alex Stein. Listen to his podcast here: https://www.thealexsteinpodcast.com

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