Ep 5: Narcolepsy, Independence, Dreams, with Sam Howard

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What is it like to not be able to wake yourself up? What is it like to wake up in strange locations? Can you sleep while you’re awake? Sam Howard shares the misunderstandings surrounding Narcolepsy and her journey to getting a diagnosis and finding a treatment that works for her.

Joleen returns from New York and shares her empowering experience in Manhattan. We talk about dealing with fears and trauma from living and using transportation in big cities and Andy offers some practical bus advice. Sam shares the power of a hug, the stigma surrounding body hair, and we discuss our ideal swimsuits. (Squirrel costume!) Sam talks dreaming big and taking on the world and she answers listener questions: “Are you allowed to drive?” and “Is Narcolepsy genetic?”

Memorable quote: “You’re my assistant, but I bring you coffee in the morning.” -Sam’s boss, recommending a sleep study.


We want to hear from you! Email us your diagnosis stories, share any inspirational quotes, questions, comments, and reactions. What are surprising things people have said to you? What topics should we discuss? Here’s a link to contact us: www.dealwithitshow.com/contact

Sam Howard Instagram: @imsamhoward

Sam Howard Twitter: @imsamhoward

Understanding Narcolepsy: http://healthysleep.med.harvard.edu

The signs of Marfan Syndrome: https://www.marfan.org/about/signs

National Alliance on Mental Illness support: https://www.nami.org/Find-Support

This podcast is edited and produced by Alex Stein. Listen to his podcast here: https://www.thealexsteinpodcast.com

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